Connect with people who have similar genotypes and phenotypes as you!
Sign in to add a comment
I recently brought my child to a geneticist to discuss a congenital condition. I told her that I'd done 23 & Me and Livewello and offered to share the results. She literally waved me off, saying, "They test for everything and tell you nothing." She and her assistant snickered when I even brought it up. Has anyone else had similar responses from "professionals?" I was so disappointed. I really wanted her to review our results with us and discuss what they meant. :(
- 10 years, 11 months ago
My naturopath was very in favor of 23 and me. He went over my results with me and I feel that it was so helpful. I think that sometimes these same docs don't favor natural remedies either. I've gone to integrative doc at OSU and he wants all his patients to use this or a similar genetic test. Go with your instincts about this and find a doctor who supports you.
- 10 years, 5 months ago.
Yes I recently saw a cardiologist and told him the same. He didn't listen when I told him I didn't think the beta blocker with thiazide diuretic would metabolize well with me. 4 days later I gave the medicine up after a horrible reaction. Won't be going g back to this Dr. They are intimidated by us knowing more than them. Trust your gut .
- 10 years, 5 months ago.
I work in a heart cath lab and one of the cardiologists discussed his results from 23 and me. It helps him when his patients have the results because it takes some of the guess work out of the prescription process (drug resistance, etc). Not sure who the geneticist is, but that sounds extremely unprofessional. The future of medicine is genetics. What a poor representative of the medical community.
- 10 years, 5 months ago.
My cardiologist Dr.James Roberts, Jr., MD, co-author of "Reverse Heart Disease Now",uses and recommends "23andme" as an invaluable tool for insight into both diagnosis and treatment of heart and circulatory diseases. It adds an atomic bomb to the arsenal on the war on heart disease. I use it myself when picking supplements and choosing foods and as help in understanding the cause of diseases affecting our family.
- 10 years, 6 months ago.
@KS3505, find yourself another doctor, I have one in the UK that was able to go through all the 23 & me results and work out a number of issues for me, what I would say is this, this is a complex area, most doctors that get involved in genetics get involved in specific areas of genetics and outside of their area they know nothing, it sounds like your looking for specific things, find an expert in that area.
- 10 years, 6 months ago.
Look for Dr, Henry C books on Amazon and types of food cures you will be glad you did.
- 10 years, 6 months ago.
As a couple people have mentioned, Dr. Stewart is wonderful! And I used him for my daughter, but he has a year waiting list now. So I would highly recommend someone that has trained under him that helped me personally with my report. In fact we have gotten a lot more personalized feedback. Go to www.OvercomesSicknessAndDisease.com and contact Dr. Rodney Russell. He does phone consults as well as see people at his offices Texas and Colorado. He's amazing! Very knowledgeable and caring. I wish you the best.
- 10 years, 6 months ago.
My daughter's doctor can help you. If you go to www.coffeewithdrstewart.com you can listen to several interviews about genetic reports.
He is in Austin and you can look him up by searching Dr. Kendal Stewart. People fly from all over to see him.
Hope you get the help you want....
- 10 years, 6 months ago.
I found this clinic in Burlington that deals with mutation http://naturalcareclinic.ca/. She has helped me more in the month that i have been seeing her than other ND that i spent thousands and thousands of dollars with and over a years. I have Lime and getting the DNA test done is the first thing a Lymie should get done, then find somebody that knows how to interperit and treat!
- 10 years, 7 months ago.
I live in Toronto Ontario , and would love to find someone who would work with me to interpret my results. Does anyone have any leads?
- 10 years, 7 months ago.
23&me results ARE beneficial if u have specific issues - I can't see someone just getting go the testing for the heck of it. If so, no wonder docs get upset! Put yourself in their shoes - imagine someone with no clear issues coming in and handing you some random test result!! For me, it cleared up why I couldn't take s lot of medications (multiple drug resistance mutations) - just one example. I backed up with research from ncbi and medscape.
Don't bring 23 results to a geneticist though- that's thousands of dollars of tests you got for $100!! Of course they will discount their value.
- 10 years, 8 months ago.
Gosh you hit the nail on the head @VG2941! so true!!! I say use the Practitioner directory here to find the right match. I keep walking on to the next when I encounter a Physician that discounts or scoffs me off. https://livewello.com/practitioners
- 10 years, 8 months ago.
Dr. Kendal Stewart at the neurosensory clinic in Austin will read your results and has recommendations and treatments, you should find a geneticists or someone in your area who understands the livewello results and can interpret them, I would never have found the tx I needed if I didn't have a physician who understood and was experienced in the interpretation of the data.
- 10 years, 8 months ago.
I had two different genetic "specialists" scoff and become visually outraged that I used 23andme. They refuse to listen to any results (let alone look at them) and actually become indignant. It's infuriating. I wouldn't mind so much if they at least had accurate information about 23andme. They spread misinformation about how the federal government "shut them down" because they "don't know what they're doing". *ughhhh
- 10 years, 8 months ago.
@JK2201 does your research include anything regarding HAI of gram negative bacteria? Klebsiella pneumoniae UTI to be exact which I contracted 11/29/14. Trying to connect the dots regarding physical responses to this bacteria is difficult. The best I have found is that it likes an iron rich environment and that all my blood work indicates I am anemic and have been most of my adult life, this might be a good thing.
Just trying to do the best I can with what little info I can find. I want my doctor to have the next culture typed. She really has no clue and Infectious Disease dr seems pretty blasi (?) about it saying it is becoming more common. Not a good thing to say to someone that has this bacteria regardless of where it is.
- 10 years, 9 months ago.
Hi All!. I am a geneticist with a PhD in molecular genetics and 16 years of experience in basic research. Just recently did my 23andme test: indeed had found many people in need of help interpreting their results and eventually got interested. First is to say that 23andme s product is a very cost effective and cheap alternative to common genetic testing performed at hospitals. so there might be a conflict of interest here. Second, yes guys, you are right: physicians do not like to see such bunch of data brought to their table by their patients, for many reasons. The most important: it has not much diagnostic relevance and they are too many data, that is: no one has the time to sit down and go through all the scientfic papers describing the nature of the SNPs found one by one, and then make sense of what is wrong with their patients, diagnose and prescribe a treatment. Still, functional medicine, which I myself did not even hear before until I read this discussion, seems to be a good intermediate field to which 23andme users can go and get some interpretation of what is happening. I will try to get ... More
- 10 years, 9 months ago.
I am so sorry for you experience, yet not surprised at the ignorance of some medical doctors! I have been struggling with a digestive disorder since I was born and just figured out on my own through DNA detective work what is really wrong with me after years of frustration dealing with doctors... with special frustration with gastroenterologists! Thanks to 23andMe's raw data which I uploaded to two outside readers who would isolate and report on the SI gene on chromosome 3 [23andMe had it in the raw data but unfortunately did not report on this genetic disease] I was able to discover that I indeed am positive for Congenital Sucrase-Isomaltase Deficiency. From there I connected with a medical/research group and attached the 2 DNA reports --they were very interested, being so kind as to offer to include me in their research testing even though I don't qualify to be a test subject that they can report on.....I suspect because I am too old. [They said my SI gene is so strongly positive it appears most of the enzyme is not coding right.] But, I feel vindicated after years of arguing with doctors that I didn ... More
- 10 years, 9 months ago.